{"id":126921,"date":"2026-04-07T13:47:31","date_gmt":"2026-04-07T17:47:31","guid":{"rendered":"https:\/\/cablemanpro.com\/wallstreetpr\/man-with-celine-dions-rare-disease-warns-her-comeback-could-be-dangerous-126921"},"modified":"2026-04-07T13:47:31","modified_gmt":"2026-04-07T17:47:31","slug":"man-with-celine-dions-rare-disease-warns-her-comeback-could-be-dangerous","status":"publish","type":"post","link":"https:\/\/cablemanpro.com\/wallstreetpr\/man-with-celine-dions-rare-disease-warns-her-comeback-could-be-dangerous-126921","title":{"rendered":"Man with Celine Dion’s rare disease warns her comeback could be dangerous"},"content":{"rendered":"
\n

A former marathon runner who was diagnosed with the same condition as Celine Dion<\/a> worries that crowds could be a “trigger” during the singer\u2019s recently announced comeback.<\/p>\n

Jon Kelf, 56, was a five-time marathon runner before he was diagnosed with stiff person syndrome (SPS) in 2019, SWNS reported. Dion revealed her own diagnosis in late 2022.<\/p>\n

SPS causes progressive muscle stiffness<\/a> and severe muscle spasms that can lead to chronic pain, falls and loss of mobility over time, according to UT Southwestern Medical Center.<\/p>\n

UNEXPLAINED SHOULDER PAIN COULD SIGNAL DANGEROUS HEALTH CONDITION, DOCTOR WARNS<\/strong><\/a><\/p>\n

“In some cases, spasms are so severe that they can cause falls, broken bones and dislocated joints,” the center notes on its website.<\/p>\n

While this rare condition is not fatal, its symptoms can dramatically affect a person\u2019s quality of life.<\/p>\n

The disease is often triggered by emotional stress<\/a> or noise, elements Kelf calls “particularly debilitating.” He shared with SWNS that he never expected Dion to perform again.<\/p>\n

LEANN RIMES\u2019 EMOTIONAL REACTION TO JAW RELEASE THERAPY SPARKS WIDESPREAD BUZZ<\/strong><\/a><\/p>\n

\u00a0“I was a bit surprised. Especially when she talked about the dancing. I couldn\u2019t dance before the diagnosis, let alone afterwards,” said Kelf, who has no medical involvement or knowledge of Dion’s case personally.<\/p>\n

“Obviously, she has the resources to get the best treatment<\/a> available, but even still, it\u2019s quite remarkable.”<\/p>\n

BREAKTHROUGH ALS STUDY LAUNCHES AS DRUG AIMS TO SLOW DISEASE PROGRESSION<\/strong><\/a><\/p>\n

In 2019, the former engineer started feeling his legs tighten up and stiffen anytime he was nervous or tense, but dismissed the odd sensations until one day, he stood and couldn’t move.<\/p>\n

Kelf can now barely walk and has been forced to quit his job.<\/p>\n

Dion has announced 10 shows in September and October at the 40,000-capacity Paris la D\u00e9fense Arena, planned at three- to four-day intervals.\u00a0<\/p>\n

The intervals will be crucial for Dion to pace herself, rest and medicate<\/a> between shows, according to Kelf.<\/p>\n

CLICK HERE FOR MORE HEALTH STORIES<\/u><\/strong><\/a><\/p>\n

“Everyone\u2019s different, but I\u2019m still surprised,” said Kelf, who added that the disease could “limit” the singer.<\/p>\n

“It\u2019s challenging to live with, to say the least. You have to rearrange your entire life. There are good and bad days.”<\/p>\n

While Kelf is hopeful that Dion will be able to make the show work, he warned against underestimating the seriousness of the disorder<\/a>.<\/p>\n

“I think it could undermine how seriously people take us, other sufferers,” he told SWNS.<\/p>\n

While he views the tour as positive and inspiring, Kelf said he hopes it will lead to more support for others who are suffering.<\/p>\n

CLICK HERE TO SIGN UP FOR OUR HEALTH NEWSLETTER<\/u><\/strong><\/a><\/p>\n

“Otherwise, people may look at her and think, \u2018Why aren\u2019t I doing more?\u2019 which could ultimately have a negative impact.”<\/p>\n

TEST YOURSELF WITH OUR LATEST LIFESTYLE QUIZ<\/u><\/strong><\/a><\/p>\n

“If I\u2019m out in public, people don\u2019t see the worst of it,” he added. “It’s the same with her, they only see the good side.”<\/p>\n

Fox News Digital reached out to Dion’s representatives for comment.<\/p>\n<\/div>\n

Source – https:\/\/www.foxnews.com\/health\/man-celine-dions-rare-disease-warns-comeback-could-dangerous <\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

A former marathon runner who was diagnosed with the same condition as Celine Dion worries that crowds could be a “trigger” during the singer\u2019s recently […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"rop_custom_images_group":[],"rop_custom_messages_group":[],"rop_publish_now":"initial","rop_publish_now_accounts":{"twitter_2902945987_2902945987":""},"rop_publish_now_history":[],"rop_publish_now_status":"pending","footnotes":""},"categories":[16563],"tags":[],"stock_ticker":[],"class_list":["post-126921","post","type-post","status-publish","format-standard","hentry","category-market-news","entry"],"acf":[],"yoast_head":"\nMan with Celine Dion's rare disease warns her comeback could be dangerous - Wall Street PR<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cablemanpro.com\/wallstreetpr\/man-with-celine-dions-rare-disease-warns-her-comeback-could-be-dangerous-126921\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Man with Celine Dion's rare disease warns her comeback could be dangerous - 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